Friday 27 December 2013

One week after nut cracking

well it's a week on and the story is :

This time last week I was unconscious with a nurosurgeon rummaging around in the back of my head taking out a 3 cm tumor, I got in to recovery around 6 , spent 14 in a ward of 4 ladies on 4-6 hours monitoring while being plugged in to saline, they asked us regular question like
Do you know where you are?
What year is it?
What month is it?
 Then the usual obs, blood pressure , temp, checked pupil reaction, only pain killers I was on was paracetamol and codine every 4-6 hours.

I seamed to passed with flying colours because I only spent one day in there then got to go in a private side room with my own bathroom and moved to 6 hourly obs but just in the day. If I needed anything I just pressed the button but by this time I was totally independent by then so I only ever need them if I wanted drugs .

My main goal was to be home before Xmas day, well they let me home after lunch on Monday with a bag of steroids and a few paracetamols that's all I need,

a massive thank you to every one that thought of me during this time and sent me messages, I did see them all but due to my eyes being still quite squiff and blurred I was almost impossible to reply, my eyes are not that much better and are still blurred but I was told they could get worse for a while till the swelling goes done in that area which may be a few weeks but I'm no longer wobbly and unbalanced on my feet wich did get quite bad before my op.

Today I have had 20 pin/ staples taken out out from the back of my head, my scar is quite impressive but as they have not shaved the hair in that area on the initial scabs have gone my hair will cover it and one even know.

It's amazing and I cant get my head around that only 7 days ago I was having a craniotomy and it happened , they told me that were able to get every thing they could see and I will probable need radiotherapy on my head to mop up and cells that may be left , hopefully that will stop it coming back in that area, then it's going to be a form of chemo to hold of the other bits that are in there.

It seams they want to give me similar chemo like I had before, so a chemo then 3 week gap then again on week 4, and I think I will be jessie time again as you hair falls out with radiotherapy any way, not sure which they will do first but they are just leaving me till the new year to recover now, then once they have the results from the testing of the tumour they can decide.



So heres is to the new year and a new road of treatment and hope to result in shrinkage or total blast of the fooker and we are hoping for no evidence detected (NED) with is a possibility if treatment works.


Xxxxxxxxxxxxxxxx PMA xxxxxxxxxxxxxxxxxx

LIVE  LOVE. LAUGH 
















Thursday 19 December 2013

Crack that nut open and bin the bugger

Night before brain op,
 I go in at 7 tomorrow at Salford General , there is only me scheduled by this surgeon and the time span seams to be a few hours including recover from anaesthetic , I will be monitored fro a few hours over the day but I should not be in high dependency or anything like that . Once I am concours and poss eating with out any affects and there is no adverse pressure they will have me down on the ward .

I am till optimistic to be home for Xmas and this is my goal, . As span as I am able to I will post on Facebook or my blog even just to say I'm on my way to the ward.



So see you all on the other side hopefully with a 3 cm less lump and on the way to better vision and no headaches .


Xxxxxxxxxxxxxxxxxxx

Wednesday 11 December 2013

Riding the Big C Roller Coaster: Hardest blog ever but still positive

Riding the Big C Roller Coaster: Hardest blog ever but still positive: Well here goes You may have noticed I have not blogged for a while , that's because I have been getting on with life. But unfortunate...

Hardest blog ever but still positive

Well here goes
You may have noticed I have not blogged for a while , that's because I have been getting on with life.

But unfortunately the powers that be have decided that they will throw another spanner in the works,
I have been having headaches and funny stuff in my eyes, so mentioned it to my oncologist and was sent for an MRI on my head ,

It's not good news the little fookers have decided to set camp up in my head and have made a camping site 3cm big on the back left which affect vision , only one area for now, which apparently is a good thing I will be having surgery on the 19th as they are confident it can be cut out and then treatment with radiotherapy to mop up the stray cells that may be around  , I have been banned from driving and I'm back on steroids to stop the swelling.
This is classed as stage 4 cancer, they tell me is treatable but not curable .

I had a ct scan to see if they are camping anywhere else and it looks like there is an area on my liver , not sure how big but at moment not causing me any issues, and a spot on my hip bone and a lump under my arm I had my mastectomy on.
These will be treated and hopefully shrunk or stopped from growing by chemo of one for or another, this will be sorted offer my brain op prob in new year.

My new life will now consist or regular scans and treatments tailored to the growth of the tumours.

I have met ladies that have had these ops and have been back at work 3 months later and they have it in other areas of their bodies so are on regular chemo either by IV or tablet, but they are living their lives to the full potential and have been for years.I have found sites where ladies have lived with this 10 years plus, I realise that I will not make a pension age but it is not a guarantee as the amount of new treatment out there coming through is amazing ,

We have know for just over 4 weeks now and we needed this time to understand what this mean for us and what treatment I will be getting, I feel that I have come to terms with
 a lot of this and my view on life is now live every day as it comes, no one know the future weather you are ill or not and it's wasted energy and effort spending time on what ifs and whys, yes we have had some hard conversation but they needed to be said and once out in the open it means they can be
dealt with so that we can get past that and onwards.

I believe even more in positive thinking and that your body and mind can help you battle this .

I am still me , I feel very positive about the surgery and for my future, i will take everything they can throw at me ,I am not ill at all , I feel fit and well and I spend a lot of time doing mindfull thinking and living in the moment.
The past is gone , no one knows the future all you have is the here and now and that is how I will be spending my days.


I will be blogging regular again now, do not be afraid to contact me I still don't bite (I may do after they radiotherapy my head lol) , I still need friends to tell me of their days and troubles and life has not stopped , coffees and meals and drinks ,



LIVE LOVE LAUGH